Category: Family
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The wait. Services aren’t available when your kid needs a service.
It would be great if immediately after it is determined your kid needs something, that service would have an opening. I wish there was no shortage of providers, no wait lists, providers who didn’t say no, no out of network providers, no need for re-assessments, no need to WAIT. STATE PROGRAMS I applied for the…
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Axel deserves to be a kid too.
Axel is the super brother. Protector, pro wrestler, cuddler extraordinaire! But most importantly and problematically, Axel is an empath. From his first breath Axel has been Jeanne’s number one fan and, in turn, Maeve’s best friend. Axel has also been through the best and hardest times. The problem here, is that Axel is a four…
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Jeanne runs and hides. We struggle with elopement and safety as an Autism Family.
“Wandering, or ‘running away’ from a caregiver, is a common problem in children with autism,” says Crystal Sanford in her 2018 article Elopement and Autism for the the Organization for Autism Research. Jeanne loves to hide and surprise us. We play hide and seek as a family instead or play ghost under a blanket in…
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Family stress and health. Caring for our whole family.
In February of 2022, I had a broken back, was recovering from liver damage from a lupus attack, and had a liver biopsy to rule out bad stuff. I was in better personal health then compared to now. My resting heart rate is 20 points higher than the same time last year despite maintaining the…
We talk About Autism. 